Rare Diseases: Hurling only has a few months left. She is the only child in the world who has an unknown disease. Doctors have performed 38 surgeries in 3 years to cure him, but the answer is still not found. It’s only been a few months since he started working as a doctor.
Harleigh Tidd Rare Disease Story: There are many such diseases in the medical world, about which even the common man, let alone the doctor, does not know. A girl named Harlig has a rare disease. She is the only child in the world who has this disease and is fighting the battle of her life. Despite having undergone 38 surgeries in 3 years, there is absolutely no chance of his survival. Let us tell you what disease Harlig Tidd, a resident of Gateshead (Tyne and Wear), UK, has and when she came to know about it.
Harling’s mother Stacey says that the scan was done during 36 weeks of pregnancy. In which it was diagnosed that he had a mysterious disease. During a pregnancy scan in 2022, doctors noticed a dark patch near Herlig’s heart. Later it was discovered that his lungs had shrunk and filled with fluid and his heart had shifted from its place. Despite this, Herlig was miraculously born, even though her chances of survival were only 13 percent. But within a few days of birth, his condition worsened, his lungs shrank again and he started having trouble breathing.
38 consecutive surgeries and now the ‘last drain’
Since birth, Herlig has had a chest drain tube inserted to remove fluid from his body. Every time fluid was removed from the lungs, they would fill up again. He endured 38 surgeries in the last three years. Eventually, doctors diagnosed Herlig with a disease called Lymphangioleiomyomatosis (LAM), in which lung muscle cells grow abnormally. Along with this, she also has Chylothorax (leakage of lymph fluid in the lungs) and Skeletal Dysplasia (abnormal growth of bones and joints).
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there is no cure left
Harlig’s mother Stacey says that doctors said there was no cure left. We have spent only seven months out of the hospital in the last three years. Now Herlig has been fitted with a drain tube for the last time, which will last for about ten weeks. After that she will remain a guest for only a few days.
Last wish trip to disneyland
Stacey and her husband Stephen Tidd, 28, have started palliative care for Harleigh and are now fundraising to take her to Disneyland. Stacey says that we want Harlig to be happy in her last days, her smile will always be remembered. She is our ‘Little Warrior Princess’, the disease broke her body but not her smile.
Will give life even after death
The family has decided that Herlig’s organs will be donated after he passes away, so that his story can give life to someone else. Stacey said that our daughter may be gone, but her light will live on in many lives.
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